Living with Covid 19 – a Carer’s perspective!
It is Carers Week 2020 and we are in week 11 of the covid-19 pandemic. Life for the UK’s 6 million carers has changed overnight. My son Simon and I are feeling the pressure of his ‘shielded’ life. I admire my neighbours who have settled down to weeks of total social isolation and wish we could do the same. But like many other carers, I can see that Simon’s life has changed overnight. His daytime activities, his precious art, his friendships through the local church, fitness classes have all gone. We feel very alone, and there is the very real terror of what would happen if either of us or his wonderful support worker Richard got ill.
Life under lockdown is different for all of us who care. Walking through Chichester’s pretty streets, people flit past us in masks and gloves. Simon doesn’t like masks. He needs to see faces in order to properly understand conversations. He asks repeatedly when we can see ‘real people’ again. But the world has changed and we need masks for a long-delayed hospital appointment. Masks seem a small price to pay for the reopening of the NHS for families living with long-term conditions and disabilities that need regular monitoring and treatment.
We hope that we are winning the war against covid-19, but the aftermath will challenge us all. We have learnt some good things about human kindness and support from our local communities. But many of us feel also feel that we have experienced ‘house arrest’, we have so missed family and friends and it’s been hard. And of course, we have seen some terrible challenges in our care homes. My husband died in a wonderful care home, before covid-19 hit us so hard, and I feel passionately that we have to recognise, support and celebrate the many care workers who actually became part of our own extended families. Carers – in families and in the care workforce – must now work together to persuade Government and others to finally rethink what we mean by 2lst century social care!
Covid-19 has brought major financial, personal and practical challenges to carers. Now, we must be part of the ‘recovery’ process as (hopefully) services and support reopen. Carers UK’s report, Caring behind Closed Doors, 1 clearly sets out the challenges faced by carers living with covid-19. Living well in lockdown has been hard. But Carers UK reminds us of the importance of solidarity, the value of carer networks and peer support and the Importance of carers at the heart of any covid-19 developments.
The crisis is not over. We must be part of the big debate about how we survive in a world where covid-19 remains a long- term threat. My final thought is are that if we clap again on Thursday evenings, we must clap for all our carers -why not ‘key worker’ status for family carers, with an identify card to celebrate our role and to wave to prove ‘we are worth it’?
- Dame Russel sharing her experience